Its been 2 weeks since he left us.....

I has been exactly 2 weeks today since my beautiful baby boy passed on. I miss my baby boy so much that it hurts. He was born March 12, 2010 and died 3 days later on March 15, 2010. He was born with an extremely rare skin disorder called Harlequin Ichthyosis. It is such a rare disease that there have only been 400 cases of this reported. I was told my whole pregnancy that everything looked good and the baby always sounded great, so It was extremely heart breaking to go into labor 5 weeks early with the worries that his lungs might not be fully developed. The most I had in my mind was making sure he had all his fingers and toes. When I looked at the Doctor as soon as he came out, I knew something was wrong. He paused....then immediately took him away and proceeded to tell me that he was sorry but that there was something wrong with my baby. I have never felt the pain I felt at that moment. He was transported to Children's Hospital in Little Rock to later died in my arms of respiratory failure. He never even had a chance. He was the most beautiful thing I have ever seen and he was truly the love of my life. I miss you sweet baby....Im so sorry this had to happen to you, Mommy loves you more than life itself........